What a crazy couplet of weeks! If you lot follow me on Instagram, Facebook or Twitter, together with thus you lot know that I ended June amongst a bang past times attention the starting fourth dimension annual Gluten Free Teen Summit inward Orlando, Florida (aka, Disney World!).
This isn’t to tell that you lot should simply yell, “YOLO” together with swallow a wheat-filled Papa John’s pizza. However, you lot mightiness regard taking educated risks similar going out to restaurants that can’t guarantee 100% gluten free meals (which really few restaurants tin genuinely do, these days) but hope to practise their best. Getting glutened sucks, together with you lot evidently desire to avoid that every bit much every bit possible. However, accidents volition happen...and the goodness tidings is that, according to Dr. Green, fifty-fifty if you lot experience similar you’re dying when you’re glutened, you’re not. It would guide maintain a lot to a greater extent than repeat, large exposures to gluten to displace a large amount of harm to your intestines.
Ultimately, you lot guide maintain to practise what you lot intend makes you lot experience best - mentally together with physically - together with honor your ain remainder betwixt beingness careful to swallow gluten costless together with living your life. Having a good for you lot mindset most your diet is of import for your overall health, though, thus endeavour to brand sure as shooting that celiac illness is move of your life but non ruling it.
I don’t intend anyone offered a “solution” to this problematic feeling, but speakers did endeavour to emphasize that celiac illness (or gluten intolerance, etc) is only part of your identity, non your whole identity. Yes, sometimes our dietary restrictions can brand us experience "high maintenance." Yes, celiac disease, gluten intolerance or roughly other medical status that requires a sure as shooting diet can genuinely experience similar a large move of who nosotros are.
However, what the Gluten Free Teen Summit genuinely proved to me was that our diet is to a greater extent than a betoken of connection than an identity. It was amazing to sentinel simply how chop-chop all of the gluten costless teens bonded...but also to realize simply how dissimilar everyone who ate the same diet genuinely was. I'm never ashamed of my celiac illness or endeavour to enshroud my diagnosis from others, but I practise endeavour to recall that I am also a college student, a foodie, a writer, a daughter, a sis together with thus much to a greater extent than than simply a celiac - together with I hope this postal service tin remind you lot of all of the amazing other identities you lot guide maintain likewise the i tied to your medical diagnosis.
Even though I was invited to attend every bit a speaker (I gave a presentation on what to practise if your college doesn’t guide maintain rubber gluten costless options; most of the information I gave tin live flora here), I ended upward learning a TON from the other gluten costless teens, families together with speakers. So I idea I’d portion 4 of the commutation lessons I took away from the Gluten Free Teen Summit most staying good for you lot amongst celiac illness every bit a kid, teen together with adult!
1. Follow upward care, follow upward care, did I bring upward follow upward care?!?
The summit was lucky plenty to characteristic Dr. Peter HR Green, Director of the Celiac Disease Center at Columbia University, every bit its keynote speaker. His presentation was packed amongst information, but I intend i of the most of import points was how of import it is to acquire follow upward aid fifty-fifty afterward you’ve been diagnosed amongst celiac illness for several years. Like I ever endeavour to emphasize, I’m non a medical professional; all of the advice I give is based on my personal experiences every bit someone amongst celiac disease. So I’m non ashamed to acknowledge that follow upward aid was a totally novel concept to me. None of my doctors had ever brought it up, together with I rarely saw it discussed online.
So what follow upward aid practise I - together with anyone else amongst celiac illness - demand to get? According to Dr. Green, you lot should acquire a blood exam to banking concern represent for nutritional deficiencies (particularly ferritin, vitamin B12 together with vitamin D) every year. That blood exam should also banking concern represent your celiac illness antibodies to brand sure as shooting that you lot aren’t accidentally consuming gluten together with even thus causing inflammation together with intestinal damage. Dr. Green also suggests getting a follow-up biopsy (especially if you lot were diagnosed amongst celiac illness every bit a tiddler together with are transitioning to an adult doctor) to banking concern represent for whatever remaining damage. The destination of both of these tests is to ensure that your gluten costless diet is going good together with doing everything it’s supposed to.
2. Be careful together with endeavour to swallow gluten free...but don't allow celiac illness or dietary restrictions command your life.
One of the most challenging together with controversial moments of Gluten Free Teen Summit was when Dr. Green talked most taking educated risks when next a gluten costless diet. Obviously, when you lot guide maintain celiac illness together with know repeat exposures to gluten tin displace intestinal harm together with other nasty symptoms, you lot together with your menage unit of measurement likely similar to live extra cautious when eating out together with worry most cross contamination.
However, Dr. Green pointed out people who are hypervigilant most their gluten costless diets (to the betoken of never eating out or alone eating things clearly labeled “gluten free,” fifty-fifty vegetables) are genuinely next a maladaptive thinking procedure together with experience to a greater extent than negative feelings similar depression, anxiety, etc. (I know first-hand how unsafe these thoughts tin be; afterward my celiac diagnosis, I became afraid of all food, fifty-fifty "unhealthy" gluten costless food, for roughly time).
This isn’t to tell that you lot should simply yell, “YOLO” together with swallow a wheat-filled Papa John’s pizza. However, you lot mightiness regard taking educated risks similar going out to restaurants that can’t guarantee 100% gluten free meals (which really few restaurants tin genuinely do, these days) but hope to practise their best. Getting glutened sucks, together with you lot evidently desire to avoid that every bit much every bit possible. However, accidents volition happen...and the goodness tidings is that, according to Dr. Green, fifty-fifty if you lot experience similar you’re dying when you’re glutened, you’re not. It would guide maintain a lot to a greater extent than repeat, large exposures to gluten to displace a large amount of harm to your intestines.
Ultimately, you lot guide maintain to practise what you lot intend makes you lot experience best - mentally together with physically - together with honor your ain remainder betwixt beingness careful to swallow gluten costless together with living your life. Having a good for you lot mindset most your diet is of import for your overall health, though, thus endeavour to brand sure as shooting that celiac illness is move of your life but non ruling it.
3. Colleges are making large improvements inward their accommodations for gluten costless students.
Like I mentioned earlier, I gave a presentation all most how to last college if your schoolhouse doesn’t offering safe, gluten costless options. While preparing for my speech, I spent a goodness amount of fourth dimension researching gluten costless diets inward colleges nowadays together with was impressed past times this awesome recap.
4. Repeat afterward me: "I am non my disease."
At i betoken during the Gluten Free Teen Summit, I got to guide maintain move inward a teen panel inward which I together with other gluten free teens answered mutual questions most living gluten free. One of the most heartbreaking moments was when nosotros were asked who ever felt similar a burden because of their dietary limitations...and almost everyone inward the room (including me) raised their hand.
I don’t intend anyone offered a “solution” to this problematic feeling, but speakers did endeavour to emphasize that celiac illness (or gluten intolerance, etc) is only part of your identity, non your whole identity. Yes, sometimes our dietary restrictions can brand us experience "high maintenance." Yes, celiac disease, gluten intolerance or roughly other medical status that requires a sure as shooting diet can genuinely experience similar a large move of who nosotros are.
However, what the Gluten Free Teen Summit genuinely proved to me was that our diet is to a greater extent than a betoken of connection than an identity. It was amazing to sentinel simply how chop-chop all of the gluten costless teens bonded...but also to realize simply how dissimilar everyone who ate the same diet genuinely was. I'm never ashamed of my celiac illness or endeavour to enshroud my diagnosis from others, but I practise endeavour to recall that I am also a college student, a foodie, a writer, a daughter, a sis together with thus much to a greater extent than than simply a celiac - together with I hope this postal service tin remind you lot of all of the amazing other identities you lot guide maintain likewise the i tied to your medical diagnosis.
The First Gluten Free Teen Summit: H5N1 Summary
If I had to depict how I felt at the halt of the Gluten Free Teen Summit inward i word, it would guide maintain to live "grateful." Grateful to meet gluten costless eaters together with experts from all over the United States, including 2 of my fave online blogging pals - Erica from Celiac together with the Beast together with Taylor from Hale Life - inward someone for the starting fourth dimension time. Grateful to take away heed of novel groundbreaking developments inward the gluten costless community, similar pills that could aid celiacs experience fifty-fifty healthier on a gluten costless diet. Grateful to experience 3 days where everyone simply "got it" together with nosotros could larn together with grow from i another's stories.
Like this post? Tweet me roughly dear past times clicking here: "Have #celiacdisease, demand to swallow #glutenfree or know someone who does? Check out everything I learned most staying good for you lot amongst #celiac at the starting fourth dimension annual #GFTeenSummit! Read it all hither --> http://bit.ly/2KqEOmR"
And, of course, grateful that Generation Gluten Free together with The Gluten Intolerance Group allow me live a move of this initiative event! Even if you lot weren't able to attend, I hope that this postal service taught you lot something new, helped you lot experience to a greater extent than connected to the gluten costless community or, every bit cliché every bit it sounds, allow you lot experience a piddling chip of that Disney World magic! No questions today. Just tell me your thoughts!
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