A Alphabetic Quality To The Newly Diagnosed Fibromyalgia Warrior

Finally, you’ve got it: an official diagnosis. After years (or fifty-fifty decades) of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints, your MD sat you lot downwards too said the magic words: “You have got fibromyalgia.”

Your kickoff reaction mightiness live on relief. Even if you lot don’t know a thing nearly fibromyalgia, you lot finally have got an answer. You’re non crazy! Quite often, though, other emotions before long start flooding your head: Fear. Joy. Depression. Uncertainty.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

Trust me - as someone diagnosed amongst fibromyalgia at historic catamenia 11, I know how much of an emotional roller coaster a chronic disease diagnosis tin be. So, while I had some extra fourth dimension on my hands this wintertime break, I decided to dedicate some it to reflection. In particular, I asked myself: "What do I desire the newest members of the fibromyalgia community to know?" Here's the reply I came upward with...

What to Know After a Fibromyalgia Diagnosis:

First off, your hurting was - too is - real. I start amongst this because it’s oftentimes just what other people (from doctors to theater unit of measurement members to pregnant others) turn down to believe.

In fact, perhaps you lot spent years trying to acquire your MD to uncovering something - something that made leaving your bed each forenoon a nearly impossible challenge too turned your joints into timebombs waiting to implode - incorrect amongst you. You mightiness have got fifty-fifty started to enquiry yourself. Maybe everyone woke upward amongst aches that got steadily worse equally the twenty-four hours went along? Maybe you lot were the crazy i later all.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

On the other hand, perhaps your fibromyalgia diagnosis came equally a consummate surprise. You could’ve had an only salubrious too pain-free life until your trunk started hurting i day...and never stopped.

Either way, receiving a fibromyalgia diagnosis may initially experience similar an affirmation. You were telling the truth to all of those doctors, loved ones too friends. You actually were inwards pain. You were right!

Unlike other medical diagnoses, though, beingness told you lot have got fibromyalgia is a piddling different. Why?

There’s no magic pill or 10-step formula you lot tin follow to experience 100% hurting free.

Yes, you lot tin have medication to aid your symptoms. This is a definite approbation too I don’t desire to minimize it. One of my biggest fibromyalgia symptoms is insomnia, too when I do forget to accept the sleeping pills I’ve been using for the in conclusion 10 years, I realize but how - to set it manifestly - screwed I’d live on without them. And when my fibromyalgia flare ups were at their worst, my official fibromyalgia diagnosis allow me have referrals to physical therapy. So, i time you lot do have an official fibromyalgia diagnosis, I definitely recommend talking to your MD about joint wellness supplements (like GOPO) or medications similar gabapentin that are oftentimes used inwards fibromyalgia treatment.

Yet, a fibromyalgia diagnosis sometimes feels useless. Before the MD wrote those words inwards your medical chart, you lot hurt...and beingness diagnosed won't automatically brand your hurting acquire away. So if you lot experience frustrated or hopeless later your diagnosis, know that you lot aren’t alone.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

However, you lot should also know this: you lot mightiness have got fifty-fifty to a greater extent than ability over your chronic disease than your MD does. 

Some doctors mightiness offering a referral to a nutritionist or speak nearly the benefits of a gluten complimentary diet for , like it did/does for my mom too me).


You’re also the only i who tin uncovering out what practice conception plant for you. I’m lucky that, despite my fibromyalgia, I tin relish a lot of dissimilar forms of physical activity. Believe me, I know too am thankful for this. However, I do believe (notice: I nation “believe” because I’m non a medical professional; I’m but a fibromyalgia veteran amongst several unopen friends amongst fibromyalgia) that everyone tin uncovering some shape of motion that plant for their body.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

Depending on where your hurting degree is correct now, but getting out of bed too going to operate every twenty-four hours could live on your daily physical accomplishment. Maybe you lot tin attempt adding brusque walks that stretch into longer ones or gentle stretching routines that start morphing into beginners yoga sessions. You tin fifty-fifty speak to your MD nearly working amongst a physical therapist to larn what strengthening exercises or stretches could aid you.

My original point? Even though a fibromyalgia diagnosis isn’t a panacea - too you lot may fifty-fifty loathe your diagnosis for non beingness the existent “answer” you’ve been looking for - it tin live on a jumping off betoken for your ain medical empowerment. You tin purpose the resources that your fibromyalgia diagnosis gives you lot - ranging from medications to referrals to other experts - equally fuel for the lifestyle changes that could brand living amongst fibromyalgia easier.

The in conclusion thing I desire whatever newly diagnosed fibromyalgia warrior to know?

Whatever you lot feel, you’re allowed to experience it. 

You’re allowed to have got goodness days where you lot think, “This is awesome - is this what ‘normal’ people experience like?!?" too have got a boom doing whatever you lot want. You’re allowed to have got compassion parties when your irksome but steady progress starts to reverse, or when you lot but actually loathe how difficult living amongst fibromyalgia tin be. And you’re allowed to non know how to experience when your MD tells you lot that you lot have got fibromyalgia inwards the kickoff place.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

You know why? Well, likewise the fact that you’re i heck of a badass no thing if you’re having a “good” or “bad” hurting degree day, someone else is in all probability feeling just similar you. On days when I’m hurting to a greater extent than than park or hating how much harder fibromyalgia makes grad school, I retrieve that I’m non alone. There’s a huge fibromyalgia too chronic hurting community on too offline, too that agency that there’s ever at to the lowest degree i soul who tin completely relate.

And when you’re used to speaking a linguistic communication of chronic hurting that real few theater unit of measurement members too friends tin actually understand, knowing that you’re non lonely or crazy or overly emotion is oftentimes the exact comfort you lot need.


I’d live on lying if I told every soul latterly diagnosed amongst fibromyalgia that life automatically gets easier. Even 11 years later I was diagnosed, I even thence have got my portion of fibromyalgia flare ups. However, discovering what you lot tin do to amend your life amongst fibromyalgia does acquire easier. New inquiry is published. You take away heed nearly dissimilar tricks too tips - ranging from dietary changes to supplements to stretches - that others amongst chronic hurting have got constitute helpful. You larn to experience grateful for the goodness days too have got a solid back upward arrangement for the bad days.

 of dealing amongst unexplained symptoms similar widespread hurting too inflamed joints Influenza A virus subtype H5N1 Letter to the Newly Diagnosed Fibromyalgia Warrior

And, most importantly, you lot uncovering that, equally many challenges too negatives that come upward amongst fibromyalgia, at that topographic point are a few hidden blessings equally well. 

Some of them? Discovering that you lot are thence much stronger than you lot ever imagined - too that, no thing how much you lot can’t command your fibromyalgia, your perspective on living amongst chronic disease is upward to you.

Much honey to my beau fibromyalgia warriors too spoonies, equally ever - peculiarly during the rush of vacation season!



No questions today. Just tell me your thoughts!

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